Breakouts 3A - 3C
• 3A - Track 1: "Medical and Dental Desensitization Techniques Used to Treat Patients"
Anne Halligan-Luca, BSN, RN, CDDN and Kathryn Butvick, RN, PhD
Contact Hours: 1.5
Course Description
Routine medical and dental visits can be extremely stressful, particularly for persons with IDD. This population because of their communication, social, and sensory processing deficits can have difficulty tolerating the demands and stimuli of a heath care visit. Noncompliance with treatment can have serious repercussions on general health, as well as preclude options for participation in many programs. This presentation describes a desensitization program that combines techniques from occupational therapy, behavioral health, nursing, dentistry, and medicine that assists both the patients and providers in the completion of successful health care visits. The presenters will provide an overview of this program, including a description of the elements used to produce very positive outcomes, videos used to illustrate the techniques used in the routine healthcare visits, clinical findings, and future directions. This session will be beneficial for nurses who deliver primary healthcare, as well as for the IDD nurses who coordinate the health care of people with ID/DD.
Course Objectives
Upon completion of this course, the learner will be able to:
- 1. Provide an overview of the desensitization program, including physical and dental desensitization.
- 2. Describe outcomes to date from the program and plans for future directions and further development of the program.
- 3. Describe the techniques and unique collaborative design of desensitization program.
Speaker bios
Anne Halligan-Luca has been working with people with developmental disabilities for over twenty years. She was one of the first 100 nurses to become a CDDN. She has worked in day programs, schools and has been a Nurse Manager for Premier Healthcare for ten years. Premier Healthcare is part of the YAI Network, which serves more than 10,000 individuals with IDD in their many programs. She has lectured on various IDD healthcare topics and was instrumental in developing this unique and effective program desensitization program.
Kathryn Butvick has been the nurse administrator for Premier Healthcare for more than ten years. She has worked to develop and support the physical and desensitization program since its inception. She also is a frequent lecturer on topics related to the healthcare of persons with IDD.
These speakers have no vested interest to declare
• 3B - Track 2: "Summarizing Six Syndromes: Part 3"
Terry Broda, NP-PHC, CDDN
Contact Hours: 1.5
Course Description
This session continues our familiarization with various complex medical issues in persons with I/DD, as well as comorbid conditions and the presentation of illnesses, including challenging behaviors. Short case examples for four different syndromes will be provided to illustrate these points: Smith Magenis, Williams, Phenylketonuria and Tuberous Sclerosis. This session will also review epilepsy: one of the most common chronic health concerns experienced by people with I/DD. The prevalence can be as high as 50% in those with severe and profound disabilities, requiring nurses and DSP to have adequate knowledge in the recognition and management of this disorder. Accurate documentation for the primary care provider can lead to appropriate diagnosis and treatment of epilepsy, thus improving quality of life. This session will provide a brief overview of various types of epilepsy and review useful tools for observation and documentation of seizures. Anti-epileptic medications, their side effects, and other management strategies will also be presented.
Course Objectives
Upon completion of this course, the learner will be able to:
- Identify the characteristic features and co-morbid medical issues associated with Williams syndrome, Smith Magenis syndromes, phenylketonuria, and tuberous sclerosis complex.
- Identify various strategies that may be helpful in supporting persons with specific genetic syndromes and their families.
- Describe epilepsy-related behaviors, diagnostic testing for epilepsy, and the management and treatment of seizures and epilepsy in persons with developmental disabilities.
Speaker bio
Terry Broda is a Nurse Practitioner with almost 20 years of experience working with adults who have I/DD. She is one of the first few nurses in Canada to obtain certification from DDNA and is a past President of DDNA. Terry currently works as a consultant with Solution-s, in Ottawa, and shares a collaborative clinic with a psychiatrist, supporting persons with I/DD and a dual diagnosis. Since 2010, Terry has been appointed to the Faculty of the School of Nursing at McGill University in Montreal. She is also one of the contributors to the recent 2011 publications: The Canadian Consensus Guidelines for Primary Care of Adults with Developmental Disabilities and Tools for the Primary Care of People with Developmental Disabilities.
This speaker has no vested interest to declare
• 3C - Track 3: "Development, Implementation and Sustainability of Physical Nutritional Support Program"
Terry Lykins, RD, LMNT and Marcia Regier, BSN
Contact Hours: 1.5
Course Description
A 2001 Institute of Medicine report stresses inter-professionalism in optimizing delivery of health service, which is particularly relevant to individuals with I/DD who have complex medical needs, including physical and nutritional challenges. Accordingly, we have developed a physical and nutritional support (PNS) program aimed at providing inter-professionalism and comprehensive assessments and support for individuals with I/DD. At this session, attendees will learn about identifying physical nutritional challenges for individuals with I/DD, recognizing the value of an interdisciplinary team approach to providing supports, and will be able to give examples that can be used to evaluate the effectiveness of these supports.
Course Objectives
Upon completion of this course, the learner will be able to:
- Identify common physical nutritional challenges for individuals with I/DD.
- Explain the development of a risk screening tool and interdisciplinary team to address the physical and nutritional needs of individuals with I/DD.
- Describe methods to evaluate the effectiveness of a Physical Nutritional Support program.
Speaker bios
Marcia Regier has been employed as a clinical nurse trainer with Department of Health and Human Services at the Beatrice State Developmental Center since 2002. In that position she has collaborated with clinicians in other disciplines to assess staff educational needs and to plan, develop, and present educational activities. Since 2010 Marcia has been a part of the Physical Nutritional Support team and has assisted in the development and implementation of that program.
Terri Lykins is a registered dietitian with 23 years' experience in acute care and long-term care settings, food service and clinical practitioner management, specialization in enteral and parenteral feeding, physical and nutritional support/management, and survey preparation. She has coordinated family style dining, foodservice operations and nutritional assessment for two state ICF/MR facilities. She has been working with Beatrice State Developmental Center since March 2009, and has provided clinical oversight and program development for physical therapy, occupational therapy, speech therapy, registered dietitians, respiratory therapy, and PNM team in a State-operated Intermediate Care Facility (ICF) for intellectual and developmental disabilities under a Department of Justice settlement agreement. As the Director of Physical and Nutritional Support (PNS) Services, she has assisted in the development and implementation of the PNS program, including the development of risk screening, establishing procedures, team composition, and ongoing auditing of the program.
These speakers have no vested interest to declare